Sophie inspired to run London Marathon by ‘one in a billion’ Henry

PUBLISHED: 12:30 23 February 2018

Sophie Jones with her nephew Henry Dunn. Ref sho 08-18TI 8135. Picture: Terry Ife

Sophie Jones with her nephew Henry Dunn. Ref sho 08-18TI 8135. Picture: Terry Ife


A ‘one-in-a-billion’ toddler battling cancer has inspired his auntie to run the London Marathon to boost the charity supporting him.

Lauren Dunn with her son Henry and Henry's Auntie Sophie Jones. Ref mhc 08-18TI 8149. Picture: Terry IfeLauren Dunn with her son Henry and Henry's Auntie Sophie Jones. Ref mhc 08-18TI 8149. Picture: Terry Ife

Sophie Jones, from Ottery, wants to raise £2,000 for CLIC Sargent, which has provided emotional and medical support for her family after Henry Dunn was diagnosed with two types of cancer last year.

The two-year-old’s treatment is made harder by the fact he has Costello syndrome, a rare disorder that affects around 400 people in the world and leaves him susceptible to cancer.

Henry was born prematurely at 26 weeks, weighing 1lb 7ozs. He was diagnosed with rhabdomyosarcoma in August last year after his mum Lauren discovered a lump in his testes area. After 22 weeks of chemotherapy he is now in remission.

Then, in October, doctors discovered that Henry had stage two hepatoblastoma and believe he is the first ‘Costello child’ in the world to have liver cancer.

The family are currently waiting to learn what treatment Henry might undergo and want to raise money for CLIC so the charity can continue working with families like them.

Sophie, of Hillcrest, said: “I cannot make it better, but what I can do is help the people who have helped Henry, Laura and James. CLIC Sargent have been amazing.

“There are so many people it impacts. You never think it’s going to impact on your family. Seeing how fantastic the people who are helping Henry were, I thought if Henry can do what he is doing, I think I can put one foot in front of the other.

“We may get help for years to come or the next six months, we do not know, but if we can give to CLIC to help other people, that will mean a lot.”

Henry, a fan of Tina Turner and the Spice Girls, lives with mum Lauren and dad James in Cranbrook.

Lauren, 30, said: “We have to have some level of normality after what we have been through with Henry - the ventilations, sitting in ICU, a couple of cardiac arrests. We are lucky to have him here, let alone another year. He is very determined, he is a cheeky boy.

“He really does love life and we want to go out and do things and make memories. You always want your children to have things and we do not want to miss the opportunity.”

Sophie and Lauren are running a cake sale on Sunday, March 4, between 1pm and 4pm at 5 Tremlett Meadows, Cranbrook.

You can donate to Sophie’s online page by visiting

You can also text their donation by texting MRSJ49 to 70070 followed by the donation amount.

Comments have been disabled on this article.

Other News Stories

New blood is are being sought to keep Ottery’s floral display blooming for future years.

Read more

The Big Band is giving Sinatra, Nat King Cole and Glenn Miller their swinging signature twist this Christmas.

Read more

“Outstanding” quality of entries at colourful Horticultural Society show

Read more

Thousands of pounds have been raised to help people living with memory problems in the Sid Valley.

Read more

Mental health support group to get £70,000 over the next three years

Read more
Yesterday, 17:33

A dog in a shop window has been attracting the attention of the town while he snoozes away, waiting for his owners to transform a charity shop into a new antiques centre.

Read more
Yesterday, 12:32

“In Ottery, did CMT a life-size famous son decree,” to adapt one of Samuel Taylor Coleridge’s most well-known lines.

Read more
Yesterday, 09:12

Sidmouth Voluntary Services will use a large donation to provide a ‘lovely’ Christmas dinner for its clients.

Read more
Fri, 16:33

Top musicians last performed in Sidmouth in 2015 during their first UK tour

Read more
Fri, 15:28

Proposals to knock down part of Sidmouth College and build a state-of-the-art science block have been officially submitted.

Read more

Local Weather

Partly Cloudy

Partly Cloudy

max temp: 10°C

min temp: 3°C

Most read

Useful Links

Family notices
Advertise in the paper
Submit a Story
Submit a Story
Buy Photos
Google Plus Page
Reader Travel

Family Notices 24

Read Online

Read the Sidmouth Herald e-edition E-edition

Newsletter Sign Up

Sidmouth Herald twice-weekly newsletter
Sign up to receive our regular email newsletter

Our Privacy Policy

Show Job Lists

Find planning applications